My Heart

When I was really young the doctors realized I had a hole in my heart.  It wasn't too big so they decided to see if it would close on its own.  At the age of four when I went for my appointment with the cardiologist they learned that the hole in my heart did in fact close by itself.  Now I go to the doctor's office for a regular heart checkup about once every year.  I had my appointment today and everything is still functioning properly.  It was really neat as well because the doctor told me that I'm living proof that people can overcome their diseases and live fine with it.

School

Today at school some jerks in the hallway made fun of me.  As I was walking by they said rude comments about my disease under their breath.  Me, being the mature person, ignored it and just kept walking.  However when people make fun of me it really does get to me just like it would with anyone else.  It's times like these I'm grateful for my mom, because when I got home from school I told her what happened.  She told me that I did the right thing by ignoring it.  She also told me that there will be plenty of people to come that will make fun of me but I can't let it get to me because they can't stop me from doing anything I set my mind to.

Friends

I am extremely grateful for my friends.  They make me feel like I'm completely normal and that I don't have any disease.  For example, today when we were hanging out I told them how I was afraid to have a child when I'm older.  They asked why and so I told them because I didn't want to pass "it" onto my baby.  My friends seemed completely confused and asked what "it" was.  When they said that, it made me  feel like they look beyond my physical appearance and like me for what's inside.  My friends make me feel like I belong and I really enjoy that feeling.

Doctor's Appointment

Today I had my doctor's appointment to measure me and make sure I am still growing normally.  I was a little nervous, but not for any reason in particular.  I just always get nervous before an appointment.  Turns out I had no reason to be nervous in the first place.  I'm growing as I should be and right now I am four foot eight inches. I know that sounds short for a fourteen year old girl but it's just right for me.  

My Mom

My mom, like me, has Noonan Syndrome.  In fact that's how I inherited it, but she's normal and so am I.  Well not exactly physically, but we don't have any mental disabilities.  I'm pretty sure that's why her and I are so close, because we can relate to one another.  Whenever I have problems dealing with my disease I go to seek advice from my mom.  She's my everything and I'm so glad I have her to talk to.